Caring for someone with cancer

01

At the consultation

• Come with the patient if you can, and carry all the reports in one folder.
• Let the patient speak first. Add anything they may forget, such as dates, medicines and symptoms.
• It is fine to say, "Please explain that again in simpler words."
• Ask who to call if questions come up later.
• Please do not hide the diagnosis from the patient without discussing it with the doctor. Many patients cope better when they understand what is happening, and the doctor can help you decide how to share it.

02

Taking notes

• Write down the name of the illness, the plan, each medicine and when it is taken, and the date of the next visit.
• Note new words and ask what they mean. The glossary in this guide may help.
• Keep all papers in date order in one folder, and keep photographs of important reports on a phone as a back-up.

03

Travelling to Bikaner from nearby towns

Many families travel some distance for care. A little planning makes the journey easier for the patient.

• Call the clinic before travelling to confirm the day and time of your visit.
• Plan where you will stay, and keep a plan for the days after surgery when the patient may need to remain close to the hospital.
• Travel with a second adult if possible, and carry food, water, regular medicines and a change of clothes.
• Keep identity papers, scheme papers and all reports in a bag that stays with you.
• Ask the clinic what to do if the patient becomes unwell on the way home.

04

Caring at home

• Ask the team to show you how to care for the wound, drain or stoma before you leave the hospital.
• Keep a simple chart of medicines, meals, bowel and urine, and any fever or pain.
• Help with walking, bathing and meals, but let the patient do what they safely can. Independence supports confidence.
• Make small, nourishing meals as advised. Avoid pressing the patient to eat when they feel unwell.
• Keep the warning signs from the Before and after surgery page in view, and know where the nearest emergency department is.

05

Emotional strain

Fear, anger, sadness and guilt are all common. They are signs that you care, not signs that you are failing.

• Patients and families may feel low, anxious or unable to sleep. Please tell the doctor; counselling support can be asked for.
• Talk to someone you trust: a friend, an elder, a spiritual guide or a counsellor.
• Prayer, quiet time and routine can be comforting. They can sit alongside medical treatment.
• If a person speaks of not wanting to live, take it seriously and seek help from a doctor or counsellor without delay.

06

Talking with children and elders

07

Looking after yourself

A caregiver who is rested can care better. This is not selfish; it is necessary.

• Share tasks among family members, and accept help when it is offered.
• Eat regular meals, drink water and sleep when you can.
• Take short breaks, even a walk outside or a quiet cup of tea.
• Do not ignore your own health. If you feel unwell or very low, see a doctor.